How Seeking A Kidney Applies To Sports World
I need a kidney transplant https://nkr.org/HJT525 and I’m trying to find the right words to express my feelings — and my dilemma — in the best way I know possible.
In sports terms.
As a longtime sportswriter I have concluded that my kidney health crisis is akin to being a mid-major coach in the NCAA football and/or basketball transfer portals trying to recruit the best prospect for me. There is a pool of candidates swimming left and right into the portal out there who can make my life so much better. Yet, I know there are a lot of other coaches higher up in the food chain who need a prospect — or kidney — more than I do to survive.
So I wait for the best fit. And I wait. Wait some more. Like Aaron Rodgers on NFL Draft Day in the Green Room. I wait for someone — a family member, a friend, a friend of a friend, a complete stranger, a Swiftie perhaps? — who is willing to make a HUGE sacrifice and donate to me one of their kidneys because both of my kidneys are failing me worse than the Boston Celtics salary cap. I need a prospect who feels comfortable with what I am trying to do to succeed. In other words, someone, a difference maker, to get with my program.
I know the odds are stacked against me. I read somewhere that my odds of receiving a kidney from a potential donor matching with a non-biological relative or friend start at 100-to-1, depending on the patient’s blood type and other immunological markers that are more difficult to figure out than ESPN’s Total Quarterback Rating (QBR). Fortunately I’m a Boston Red Sox fan and, ironically, 100-to-1 were the exact odds the Red Sox faced winning the American League pennant in 1967. So getting a kidney from a living donor would be my Impossible Dream.
Coincidentally, my goal is to live at least 15 more years until the age of 86. That way I could honestly say I know how Red Sox fans felt waiting for our Olde Towne team to win a World Series in 2004 since the Curse of the Bambino was cast in 1918. It must have felt like a lifetime. My lifetime.
There are other ways to donate a kidney if not direct from donor to recipient or if the donor and recipient are not compatible. Like Red Sox and Yankees fans. There is the Paired Exchange program (http://bit.ly/3VqtmcQ) which is like the proverbial trade that helps both teams and there is a voucher (http://bit.ly/4p35fyP) that is sort of like a rain check in baseball when a game is rained out and you get to choose another game — or kidney donation — that best fits into your schedule.
The National Kidney Registry has created more innovative ways to connect a donor with a recipient than an NBA team trying to connect Kevin Durant to another championship.
Thanks to all the support I have received via social media posts, emails, and texts I know I’m not alone in this race against time. However, I feel alone. This is my deeply personal battle and, though I didn’t ask for it, it’s my birthright. I inherited an incurable genetic disease and it sucks for me. I have more cysts on my kidneys now than there are injury accident attorneys and lawyers on my TV.
My brother waited eight years for a deceased donor. He ran out of luck and time.
I saw my brother take his last dialysis treatment in his hospital room in Lawrenceville outside Atlanta and vowed I would never, ever play that game. Dialysis is like a no-trade clause in my contract with life. If I become an aging veteran craving one last, desperate chance at winning a championship, I might consider waiving it. Otherwise I have chosen to be proactive and pursue a living donor, which is a different game and requires me to swallow my pride and ask for help.
That’s not easy. That’s not my style. I have to be selfish to an extent because, well, my life is at stake.
There is hope of finding a living donor and a process behind it. Initially I was assigned a living donor search coach through the National Kidney Foundation. She is my Bill Belichick. I also have connected with my offensive coordinator, who is the transplant coordinator at UCSF, about an hour’s drive from my home. He’s calling the plays and will tell me when it is my time to schedule a kidney transplant evaluation appointment once a prospective living donor comes onto the field of play.
Though I am committed to the UCSF team, I can opt out of my deal and, at my age, get a kidney transplant evaluation at one of 100 transplant centers across the country including Mayo in Phoenix. This is called multi-listing, which is sort of like the NFL Combine in Indianapolis before the draft when everyone has a chance to interview and test you and do workups.
What has been a blessing in this process is the network of people I have communicated with through family and friends who have either received a kidney or are awaiting one. Their advice and perspective have been immeasurable. It’s like getting a scouting report before the World Series. Like knowing Dennis Eckersley throws a backdoor slider on a 3-2 count to lefthanded hitters. I’m trying to hit one out of the park.
That has lowered my anxiety level, but also pushed me to step up to the plate and swing for the fences. The problem is the fences — a potential living kidney donor — seem as far away as the Colorado Rockies in the standings.
The first step — the biggest one — is to have someone volunteer to be a donor. That begins with consenting to a blood test that is as thorough as testing an Olympian. Simply go to https://nkr.org/HJT525 and click on the “See If You Are Qualified To Donate” button on the upper righthand corner of my National Kidney Registry microsite website.
In the meantime, I will run in place. It is UCSF policy that I wait for prospective living donor to emerge before I am notified and asked to do a kidney transplant evaluation. With Type O+ blood type, it is normally a 8-9 year wait for a deceased kidney donor. But, with a living donor, it could be three weeks to six months, about the time Jerry Jones took to figure out what to do with Micah Parsons.
If I’m lucky. My eGFR number — which measures my kidney function that estimates how well my kidneys filter waste products from the blood — is dropping faster than the San Francisco Giants’ wild card chances.
My only hope right now is having a living donor, which significantly produces better medical outcomes and a longer life, almost double that of recipients receiving a kidney from a deceased donor. Hence, I’m not holding up hope that Babe Ruth’s kidney will become available.
Prospective living donors for me can email living.donor@ucsf.edu for more information.
This whole kidney-seeking ordeal has me on a roller coaster of emotions. I should be working on my next book, but it’s hard to concentrate. Hard to be motivated and move onto something that isn’t so life and death.
I’m not in physical pain. Not yet. My kidneys are starting to ache, like a tooth ache. I feel the ache most when I wake up in the morning in bed, a constant reminder these damn cysts have been building up for years and they are barking now.
Mentally, I’m getting worn down. It’s like the so-called dog days of August in baseball. You keep pushing to make the playoffs, but there are a bunch of teams ahead of you in the wild card standings. The feeling of fatigue has become more concerning, but not the kind of fatigue one might get from reading all my recent social media posts about my book www.thelastoneoutoftown.com. This fatigue is real and physical and it includes the weight of soliciting a kidney in a very public way, which is much more significant than promoting a book or following Taylor and Travis.
I still find the motivation to exercise. The FitBit on my left wrist is my constant companion. I call my FitBit “Brian Kenny” because it gives me more analytics that I need such as BPM, Energy Burned, and Cardio Load and some I don’t need such as WAR, Exit Velocity, and Launch Angle. I once had a streak of 321 consecutive days of recording 10,000 steps or more (then got Covid), but now — with my kidneys beaconing for help — my daily goal is a minimum of 15,000 steps around the Northern California town where I have lived for more than 30 years. I try to pass 10,000 steps by noon and I know my wife and I will log 3,000 or more with our evening walks. That’s my slash line.
The morning walks used to be the most stress free part of my days in retirement. My logical progression of thought if you will. I could think about anyone and anything in quiet solitude. I would be thinking about my next book with legendary Connecticut high school and Yale football coach Larry Ciotti.
Not now. My quest for a kidney donor consumes my brain and my body is preparing for the inevitable. I try to stay in shape, stay positive and stay away from food and drink that cause my blood tests to spit out high numbers. I’ve stopped screaming for ice cream and ended my Dunkin runs. I miss my wife’s no-bake cookies and the #2 with Dr. Pepper at In-N-Out.
Thankfully, I’m losing weight, but because cysts are still growing on my kidneys and making them balloon, it’s resulting in a “PKD Belly” which is basically a beer belly without Sam Adams.
This is my life right now. My game plan. I’m trying to make myself the best possible candidate at my age for a kidney transplant.
I’m waiting in the on-deck circle.